Media Essentials
Spokespeople, facts, photos, and more.
Briefing Paper
ME/CFS Australia has a one-page briefing paper explaining the illness, with up-to-date data on ME/CFS in Australia.
Please email or phone 0493 468 288 for the current version.
Media Contacts
ME/CFS Australia
Penelope McMillan, spokesperson
penelope.mcmillan@mecfs.org.au
A presentation featuring Penelope at Parliament House, Canberra.
- ME/CFS South Australia Penelope McMillan, Advocacy Lead pmcmillan@mecfssa.org.au
- ME/CFS+FM QLD Sarah FitzGerald
- ME/CFS WA Stephen Le Page
- Bridges & Pathways Institute Cathie Powell
- MYQoL (formerly ME/CFS NSW) Robert Longworth
How to report with accuracy and sensitivity on contested illnesses
Reporting
Feature article by science writer, Julie Rehmeyer, on how to write about ME/CFS
Images
Poster on how to represent ME/CFS more accurately in images
Language
Use of the word 'fatigue' has created misunderstanding, dismissal and stigma for people with ME/CFS and has hindered progress in ME/CFS research and clinical practice.
It is important to differentiate between fatigue, chronic fatigue, chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME).
Lived-experience videos
Two short videos of lived-experience were presented at Parliament House in SA in June 2024. Voice and video clips may be reproduced with attribution to ME/CFS South Australia Inc. ME/CFS South Australia Inc. retains copyright of these images.
Photo Gallery
For use with attribution to ME/CFS South Australia Inc.
ME/CFS South Australia Inc. retains copyright of these images.
Professional stock images
The German Association for ME/CFS has generously provided 43 professional stock photos for use in media articles, which accurately depict the reality of people living with ME/CFS. The images are available in high quality JPEG and very high quality TIFF.
Details regarding attribution and conditions of use apply.
Further information
Let us know what aspect of ME/CFS you are interested in. We are more than happy to talk and provide the appropriate material. Please contact us.
Last edited: 23 July, 2025