Resources for Patients/Carers

List of Patients/Carers Resources

Resources are organised into related topics for easy access.
More resources to come.
Web pages can also be viewed in languages other than English.

Post-Exertional Malaise (PEM)

PEM is the unique, identifying feature of ME/CFS.
It is also known as post-exertional neuroimmune exhaustion.

Pacing

Managing rest and activity to reduce the incidence and severity of
post-exertional malaise (PEM).

Long COVID and ME/CFS

Those who have lingering symptoms after being infected by COVID-19 are referred to as having Long COVID. Some people with Long COVID will develop ME/CFS.

Activities of Daily Living (ADLs)

A person's capacity to manage everyday tasks is assessed by measuring ADLs.

Explore the Research

Linking up with ME/CFS research literature, discussion and analysis.

Fatigue

The fatigue experienced in ME/CFS is pathological and incapacitating.
It is not normal tiredness.

Autonomic Dysfunction

People with ME/CFS experience a range of symptoms associated with dysfunction of the autonomic nervous system, also known as 'dysautonomia'.

Orthostatic Intolerance (OI)

OI is an inability to function when upright, due to reduced blood flow to the brain.

Neurocognitive Dysfunction

People with ME/CFS experience a range of neurocognitive symptoms.