Resources for Researchers
We can help with your research
We have an experienced consumer and community involvement team which may be able to assist you, from co-design through to disseminating your publications.
SA Parliament House Lived-Experience Videos
Stories about living with ME/CFS shared at the South Australian Parliament 18 June 2024.
Megan and Angus' story; Bruce and Nicola's story.
Post-Exertional Malaise (PEM)
PEM is the unique, identifying feature of ME/CFS.
It is also known as post-exertional neuroimmune exhaustion.
Pacing
Managing rest and activity to reduce the incidence and severity of
post-exertional malaise (PEM).
Long COVID and ME/CFS
Those who have lingering symptoms after being infected by COVID-19 are referred to as having Long COVID. Some people with Long COVID will develop ME/CFS.
Activities of Daily Living (ADLs)
A person's capacity to manage everyday tasks is assessed by measuring ADLs.
Explore the Research
Linking up with ME/CFS research literature, discussion and analysis.
Education
There are many not-for-profit and government agencies that provide a wide range of services to assist people with chronic illness and disability.
Social and Mental Health Support
There are many not-for-profit and government agencies that provide a wide range of services to assist people with chronic illness and disability.
Lived Experience of ME/CFS - Videos for Service Providers
Making visible the experiences that people with ME/CFS describe to you.
